Waiting...

Well 1 week till the big day. We are hanging in there. I spoke with the cardiologist today just to answer some of my questions like: Does Eli have a partial or full AV canal? (that would be the nurse in mommy coming out. I have scoured the internet trying to learn everything I can so there will be no surprises. I do not like surprises when it comes to my children. I already had the biggest one ever when we were given this diagnosis) Well, they said, I guess we call it kinda intermediate. Hmmmm. I guess that would explain why they were so surprised he was so healthy. The ventricular septal defect is very small although it is definately there. Question #2: Does he have pulmonary hypertension and if so will it be resolved with the surgery? Does he need a cath or a swan? They said any pulmonary hypertension would be fixed with the surgery so no need to do a cardiac cath. Well, let's keep praying for an uneventful outcome! Go Eli!

Update

Hi everyone,

We finally schelduled surgery for September 4th. We will go to Children's Hospital on the 3rd and meet with the surgical team, get labs, an echo, EKG and a chest x-ray. Then we go home and try to sleep before surgery the next day. Eli is doing great. We are just trying to keep him healthy. Keep those prayers coming in!

Reunion time

Hi everyone,

We had a fun filled weekend with the Hall clan! Many of the Hall's were able to come to St. Louis for a whirlwind family reunion for Butch's 50th birthday. Between golf, the Zoo, the boathouse and Lincoln's birthplace it was to say the least a very busy weekend. Thanks to Michelle and Dino for hosting a couple nights. Your newly remodeled basement got broken in for sure!

Broken hearts

Hi everyone,

We got some startling news on Thursday. After hearing a new heart murmur approximately 2 weeks ago it was recommended we go to a cardiologist to get an Echo, just to make sure it is nothing. Well, that was not the case. We were shocked to learn, along with the cardiologist and pediatrician, that Eli has a congenital heart defect called Atrioventricular canal defect (aka AV canal). This is where there is a hole seperating the upper chambers of the heart (the atrium)and the lower chambers of the heart (the ventricles). Common holes are usually atrium to atrium (ASD) or ventricle to ventricle (VSD). This AV canal also include his valves. He has one large hole where there should be seperate mitral and tricuspid valves. Most babies are usually in heart failure by 3-4 months of age. Eli has a small amount of heart failure, his heart is slightly enlarged but nothing major. Nobody can believe he is as healthy as he is being almost 17 months old. Our only outward sign was his small size (0-5th percentile) and lack of eating which was attributed to our family's small size and pickiness. He has been small since birth so that was another reason we were not overly concerned about his weight. He was born at 5 pounds 15 ounces and is currently 20 pounds 2 ounces at 16 months old. His new murmur is attributed to some new failure of the valves due to the defect probably starting to take a toll. He will need open heart surgery to patch the holes and repair the large hole making in into 2 valves. At this time we are waiting to hear from the cardiothoracic surgeon. This surgery is not emergent but needs to be done sooner rather than later. He is at risk of going into full heart failure. He is a strong little guy as he has shown us thus far. He will make great strides after surgery. Keep Eli in your prayers!